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Cauda Equina Syndrome: Recognising a Spinal Emergency

How to screen for cauda equina syndrome at the pharmacy counter and refer appropriately when back pain or sciatica is accompanied by bladder, bowel, or saddle sensation changes.

Why this matters

Cauda equina syndrome (CES) is a rare but devastating spinal emergency caused by compression of the nerve roots at the base of the spinal cord. It affects 1 to 3 people per 100,000 population each year, most commonly due to a large lumbar disc prolapse, though tumour, haematoma, spinal infection, and trauma are also recognised causes.1,3 If compression is not relieved promptly, patients can suffer permanent loss of bladder and bowel control, sexual dysfunction, and bilateral lower limb weakness, neurological deficit, and permanent disability.5

Community pharmacists are well placed to identify patients who may be developing CES. A patient buying analgesics for sciatica who mentions difficulty passing urine, or numbness in the saddle area, should never leave without an urgent assessment. Early recognition and immediate referral can be the difference between full recovery and permanent disability. The condition does not follow a single clinical pattern: no one symptom is diagnostic on its own, and negative physical tests do not rule out CES if positive subjective symptoms are present.1,4

Red flags vs more likely benign

FeatureMore likely benignRed flag ⚠
Bladder functionAble to void normally with full sensationDifficulty starting, reduced stream, impaired sensation of flow, or inability to void at all
Saddle area sensationNormal feeling in perineum, inner thighs, genitals, and buttocksNumbness, pins and needles, or reduced sensation in the saddle area (S2 to S5 dermatomes)
Bowel controlNormal bowel control and rectal sensationReduced sensation of rectal fullness, or loss of bowel control
Leg symptomsUnilateral sciatica or back pain, stableSevere or progressive neurological deficit of both legs, such as new major weakness affecting walking, foot lift, knee extension, or ankle movement. Note: bilateral sciatica or leg pain without bladder, bowel, saddle, or sexual symptoms is urgent MSK triage, not a CES emergency.
Sexual functionNo changeNew loss of genital sensation, or new inability to achieve erection, ejaculate, or orgasm
Symptom courseLongstanding, gradual, or stable symptomsRapid onset or deteriorating neurological symptoms within the last 14 days

Questions to ask any patient with back pain or sciatica

A brief targeted screen for CES symptoms takes under two minutes and can identify a spinal emergency. Patients rarely volunteer bladder, bowel, or saddle symptoms without direct questioning: always ask.

  • "Are you having any trouble passing urine? Do you have to strain, or does it take a while to get started? Does the flow feel weaker than normal?"
  • "Have you had any leaking of urine that you could not control, or any accidents?"
  • "Have you noticed any numbness or tingling in your inner thighs, between your legs, around your genitals, or around your back passage?"
  • "Any change in your bowel control, or do you feel less sensation when you need to go?"
  • "Has the pain or weakness spread to both legs, or are you getting new weakness in either leg?"

Urinary incontinence alone is less specific for CES, but it should still prompt a full CES screen. Consider urinary tract infection, stress incontinence, and urge incontinence as alternative causes, but only exclude CES if saddle area sensation, urinary sensation, bowel, sexual, and neurological function are all normal.1 Digital rectal examination is not required in community pharmacy triage, but subjective perianal and saddle sensation should be asked about and documented.1 Negative physical tests do not rule out CES if positive subjective symptoms are present.1,4

Documenting a CES consultation

GIRFT recommends pharmacists document the following whenever CES is suspected or cannot be excluded:

  • Exact symptoms reported and their onset or deterioration date
  • Urinary symptoms: stream quality, sensation of flow, any retention or incontinence
  • Saddle area sensation: presence or absence of numbness, tingling, or perianal changes
  • Who was contacted (999, NHS 111, GP, or Emergency Department) and the advice given

Thorough documentation protects the patient and the pharmacist if the referral pathway is later reviewed.

What to do in pharmacy

Call 999, or follow local emergency referral or transfer pathway to the nearest Emergency Department, if the patient describes complete inability to pass urine (painless urinary retention), total loss of saddle sensation, or rapidly worsening bilateral leg weakness. These features may indicate complete cauda equina syndrome (CES-R). Emergency MRI and urgent spinal/surgical assessment are required as quickly as possible; decompression may be needed if CES is confirmed. If emergency transfer is being arranged and this does not delay care, advise the patient not to eat or drink while awaiting assessment.1
This is an emergency referral. Send the patient to the nearest Emergency Department or facility with emergency MRI provision now if they report any CES symptom of recent onset (within the last 14 days) or recent deterioration: difficulty starting urination, impaired sensation of urinary flow, saddle area numbness or tingling, loss of rectal fullness sensation, new sexual dysfunction, or severe or progressive neurological deficit of both legs. Advise the patient not to drive themselves if neurological deficit, urinary retention, severe pain, or rapid deterioration is present: call 999 or arrange safe transfer. Do not ask the patient to book a GP appointment. A telephone referral to the Emergency Department is acceptable if immediate face-to-face assessment is not possible.1
OTC analgesia is appropriate for simple mechanical back pain with no bladder, bowel, saddle, or bilateral neurological features. Do not recommend OTC analgesia as a holding measure if any CES symptom is present. Ibuprofen (with food) and paracetamol are first-line options for mechanical pain; note standard ibuprofen cautions (avoid or seek advice in peptic ulcer disease, severe heart failure, significant renal impairment, anticoagulant use, and pregnancy after 20 weeks). Staying active is preferred over bed rest.2 Always safety-net clearly: advise the patient to go to the nearest Emergency Department immediately if they develop any difficulty with bladder or bowel control, numbness in the saddle area, or leg weakness.

Key takeaways

  • Any CES symptom of recent onset alongside back or leg pain requires immediate referral to the nearest Emergency Department: do not delay for a GP appointment.
  • Always ask directly about bladder stream, saddle sensation, and bowel control: patients rarely raise these symptoms unprompted, and negative physical tests do not rule out CES.
  • Urinary incontinence alone is less specific for CES, but must still prompt a full CES screen: only exclude CES if saddle sensation, urinary sensation, bowel, sexual, and neurological function are all normal.

📚 References

  1. NHS England, Getting It Right First Time. National Suspected Cauda Equina Syndrome (CES) Pathway. NHS England; 2023 (updated March 2026). Available from: https://gettingitrightfirsttime.co.uk/wp-content/uploads/2026/04/National-Suspected-Cauda-Equina-Pathway-March-2026.pdf
  2. National Institute for Health and Care Excellence. Low back pain and sciatica in over 16s: assessment and management. NICE guideline NG59. NICE; 2016 (updated December 2020). Available from: https://www.nice.org.uk/guidance/ng59
  3. Greenhalgh S, Finucane L, Mercer C, Selfe J. Assessment and management of cauda equina syndrome. Musculoskelet Sci Pract. 2018;37:69-74.
  4. Todd NV. Guidelines for cauda equina syndrome. Red flags and white flags. Systematic review and implications for triage. Br J Neurosurg. 2017;31(3):336-9.
  5. Woodfield J, et al. Presentation, management, and outcomes of cauda equina syndrome up to one year after surgery: a multi-centre prospective cohort study. Lancet Reg Health Eur. 2023;24:100545.

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